[...]... www.heartstats org Warnes CA, Liberthson R, Danielson GK, et al (20 01) Task force: 1 The changing profile of congenital heart disease in adult life Journal of the American College of Cardiology, 37, 11 70 11 75 Wren C & O’Sullivan JJ (20 01) Survival with congenital heart disease and need for follow up in adult life Heart, 85(4), 438–443 Adult Congenital Heart Disease: A Practical Guide Michael A Gatzoulis, Lorna Swan,... Heart Association www.americanheart.org • Canadian Adult Congenital Heart Network www.cachnet.org • Royal Brompton Adult Congenital Heart Unit www.rbh.nthames.nhs.uk • Japanese Society for Adult Congenital Heart Disease www.jsachd.org • Congenital Heart Surgeon’s Society www.chssdc.org • 2000 Canadian Cardiovascular Society Consensus Conference on Adult Congenital Heart Disease www.rbh.nthames.nhs.uk/Cardiology/Consensus/index.htm... of adults with congenital heart disease Canadian Journal of Cardiology, 17 , 940–59, 10 29 10 50, and 11 35 11 58 Webb GD, Williams RG, et al (20 01) 32nd Bethesda Conference: Care of the adult with congenital heart disease Journal of the American College of Cardiology, 37, 11 61 11 98 Adult Congenital Heart Disease: A Practical Guide Michael A Gatzoulis, Lorna Swan, Judith Therrien, George A Pantely Copyright... multi-centre study Lancet, 356, 975–9 81 Nieminen HP, Jokinen EV & Sairanen HI (20 01) Late results of pediatric cardiac surgery in Finland: a population based study with 96% follow-up Circulation, 10 4, 570–575 Therrien J et al (20 01) CCS Consensus Conference 20 01 update: recommendations for the management of adults with congenital heart disease Canadian Journal of Cardiology, 17 , 940–59, 10 29 10 50, and 11 35 11 58... endocarditis, mitral valve disease, right ventricular outflow tract obstruction, straddling tricuspid and/or mitral valve, subaortic stenosis Modified from Therrien J et al (20 01) CCS Consensus Conference 20 01 update: recommendations for the management of adults with congenital heart disease Canadian Journal of Cardiology, 17 , 940–959, 10 29 10 50, and 11 35 11 58 (with permission) 12 Chapter 2 CHD, should... www.pha-uk.com Services for the Adult with Congenital Heart Disease 15 Professional and other useful websites Numerous websites provide useful information on adult CHD exclusively or as part of a cardiology forum • ISACCD: International Society for Adult Congenital Cardiac Disease; ISACCD seeks to promote, maintain and pursue excellence in the care of adolescents and adults with congenital cardiac disease. . .Adult Congenital Heart Disease: A Practical Guide Michael A Gatzoulis, Lorna Swan, Judith Therrien, George A Pantely Copyright © 2005 by Blackwell Publishing Ltd PART 1 General Principles Adult Congenital Heart Disease: A Practical Guide Michael A Gatzoulis, Lorna Swan, Judith Therrien, George A Pantely Copyright © 2005 by Blackwell Publishing Ltd CHAPTER 1 Epidemiology of Congenital Heart Disease. .. www.rbh.nthames.nhs.uk/Cardiology/Consensus/index.htm • Proceedings of the 32nd Bethesda Conference Care of the Adult with Congenital Heart Disease Journal of the American College of Cardiology 20 01; 37: 11 61 11 98 www.acc.org/clinical/bethesda/beth32/dirindex.htm Further reading Brickner ME, Hillis LD & Lange RA (2000) Congenital heart disease in adults New England Journal of Medicine, 342, 334–342 Gatzoulis MA, Balaji S, Webber... 15 0,000 adults with congenital heart disease This would be equivalent to a prevalence of 250 cases per 10 0,000 (See Table 1. 1.) 3 4 Chapter 1 Ventricular septal defect Atrial septal defect Patent ductus Pulmonary stenosis Coarctation Aortic stenosis Tetralogy of Fallot D-transposition Other 30% 10 % 10 % 7% 7% 6% 6% 4% 20% Table 1. 1 Commonest cardiac lesions (at birth) Nomenclature One of the main ‘turn-offs’... syndrome www dsa-uk.com • Congenital Heart Defects.com This site is devoted to providing information to members of the worldwide congenital heart defect (CHD) community www.congenitalheartdefects.com • The Congenital Heart Disease Resource Page Provides a collection of resources, including books, web resources, support groups and defect information www.csun.edu/~hcmth 011 /heart • Children’s Heart Information . ISBN 0-7 27 9 -1 66 8-8 1. Congenital heart disease. [DNLM: 1. Heart Defects, Congenital Adult. WG 220 A2445 2005] I. Gatzoulis, Michael A. RC687.A454 2005 616 .1 2043—dc22 2004 019 723 ISBN 0-7 27 9 -1 66 8-8 A. ix Acknowledgments, x Part 1 General Principles, 1 1 Epidemiology of Congenital Heart Disease, 3 2 Services for the Adult with Congenital Heart Disease, 8 3 Pregnancy and Contraception, 16 4 Infective. Consensus Conference 20 01 update: recommendations for the management of adults with congenital heart disease. Canadian Journal of Cardiology, 17 , 940–959, 10 29 10 50, and 11 35 11 58 (with permission).